A Few Random Pics and Story for #Project365

Words of Comfort {Day 33}

Words of comfort {Day 33}

First Sunrise at Bellevue {Day 34}

First Sunrise at Bellevue {Day 33}

My Turn as a Patient {Day 38}

My turn as a patient {Day 38}

New Jersey Looks Nice {Day 45}

New Jersey Looks Nice {Day 45}

This picture has the best story. A little background info – my mom has the worse sense of direction. So we are sitting in my dad’s hospital room and this is the view from the window. She says to us, “Is that New Jersey?”

My sister and I bust out laughing because that’s such a mom comment. Meanwhile the hospital is on the East Side of Manhattan and that’s the Brooklyn/Queens border. She thinks its funny too because she never knows where she is. It’s so cute because that’s so my mom. It was one of the last funny things we were able to tell dad. All three of us always teased mom about her getting lost as soon as she’s off our block! :)

Max and Dad’s Stuff {Day 48}

Max & Dad's Stuff {Day 48}

My Favorite Dessert {Day 53}

My Favorite Dessert {Day 53}

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Between Two Sunrises {Day 6}

This sunrise photo was taken on the day I lost my father – 2/16/12.

Sunrise 2/16/12

This sunrise photo was taken today – 2/22/12.

Sunrise 2-22-12

Between those two photos my whole life has changed. My range of emotions have been all over the place. The pain is so incredible and even now I think I will surely wake up from this nightmare very soon.

It all can’t be…but it is.

Sadly it is.

Being with my father on the afternoon he died will forever be the most precious moment of my life. It was a blessing that the four of us were together. I will never forget the day, the exact moment or where we were. I will never forget the warmth of his hand in the morning and then the cold stillness in the afternoon. I will never forget placing my head on his chest to hear his breath on what I knew would be his last day. I prayed that God would end his suffering and then when it did happen, I prayed that He would take me too. My pain was unimaginable, no words can possibly describe it. But as I stopped to take a breath I saw I was not alone. My mother and my sister needed me. It was my sister that I grabbed into my arms first and then went to my mom. In my arms were all I had and I knew I needed to do something fast.

I notified my uncle and then the funeral home. Those were the two calls that needed to happen first. After I called my cousins, friends and work. It was all a blur from the moment he was gone until the funeral home took him away. Within that time the nurses fixed my dad into a perfect peaceful pose and placed rose petals over the white sheet that covered him. It was beautiful. I remember walking out of the hospital without him, knowing I would never return. Somehow I got the car and drove us home. With intermittent tears and a numbness I’d never felt. My world was different and I didn’t know who I was. I had lost my father and a big part of myself.

At home there was more crying and more phone calls of condolences. My aunt asked if we had eaten and insisted on bringing us food since they were coming to be with us. I agreed even though we had no desire to eat. When they got to our house, I realized how great it was to have them near. Especially my uncles because they are such a huge connection to my father. We hugged, we cried and eventually we ate. The food was comforting as we remembered stories about Dad. When they left, we went to sleep out of exhaustion and with the hopes that losing Dad was just a bad dream.

In the days that followed, we made funeral and burial arrangements, went shopping for black clothes, put together Dad’s collage, held the wake, funeral mass, I did the eulogy for my father and buried him. I’m sure I will write in detail about each of those events in the days to come. There are so many stories that touched my heart. In my darkest moments, I still feel blessed not only for having my mother and sister with me but also my extended family and some very dear friends.

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Gone From My Sight But Not My Heart {Day 1}

God saw you getting tired, and a cure was not to be. So he put his arms around you, and whispered, “Come with me.” With tearful eyes we watched you, and saw you pass away. Although we loved you dearly, we could not make you stay. A golden heart stopped beating. Hard working hands at rest. God broke our hearts, to prove to us, He only takes the best.

-Unknown

Yesterday when the sun was rising I was in a hospital room with my father. He was not doing well but he was still here. Today is the first day I have to live without him. Yesterday at 3:43 PM my father lost his battle with cancer. A battle that started in March of 2008 and one he fought bravely and with more strength that I ever imagined was possible. My heart is broken yet filled with love and gratitude. It aches because I will never hear my father’s voice again, feel his arms around me or get a kiss from him. It hurts beyond words to have to live without him. I feel lost and I don’t really know who I am anymore. My whole world is different and I don’t know what to do first. Yet at the same time I can feel grateful that my father is in Heaven. He is no longer suffering and his body has been restored to its healthy self. He is with my grandparents, aunts, uncles and cousins who left this world before him. I know they have welcomed him and knowing my father I know there is a lot of love and laughter up in Heaven.

I also find comfort in that I was so lucky to be able to care for him up until his last breath. Bringing him home for hospice care was absolutely the right decision. These last two months with him are ones that my mom, sister and I will treasure forever. We did all that we could to make him happy and we’d do it again in a heartbeat. I also have to find comfort in my mom and sister, they are all I have now and I know the three of us will face the next few days together. After that we will take it one day at a time.

Thank you for all the wonderful messages of support. I am very lucky to have wonderful friends that help make the darkest days a little brighter.

With that I leave you with a few pictures of my beloved father.

Dad

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Two Months Ago

Two months ago today my dad came home for hospice care. Tonight my sister and I find ourselves at his beside at the hospital. My dad’s prognosis back in December was weeks to months.

Months, that’s what I focused on. It could be many months. That’s what I hoped. When we had to come to the hospital two weeks ago, the prognosis was weeks.

Weeks, I can work with that. It could be many many weeks. Over the weekend we were told days to weeks. Painful to hear but still weeks plural meant more time.

This morning the prognosis is hours to days.

Hours, please just stab me through the heart now. Please. But we are at 11+ hours since I heard those words. God has blessed us today. But what about tomorrow? No one knows.

Again I go from acceptance to denial to wanting to scream until I can’t stop. I don’t know if my heart can handle what lays ahead. I know I must. I’m having a difficult time and I asked for help. I spoke to the social worker who’s kind words gave my soul some peace. Temporary peace but something is better than nothing.

I’ve said a million “I love you’s” in these last 11 hours. I’ve shed just as many tears but I’m honored to be here with him. I’m honored to be his daughter. He will always be with me. I will love him forever. I know I’ve done all I can to make his final days the best they could be. It’s all in God’s hand now and I pray he grants my dad peace.

Thank you everyone for the prayers, wishes and touching comments, tweets, emails and texts. Words can’t express how touched I am by all the love you’ve shown my family.

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Behind the Disease and Drugs

I am sitting in the hospital with my dad. The cancer is progressing and filling his body with toxins. That’s why he can’t hold down food or liquids. I must reconcile myself with the fact that “this is what’s supposed to happen.” If someone else tells me that again, I’m going to scream. Yet at the same time it makes perfect sense. These days I go from understanding my father is dying to having it hit me with shock. The same kind of shock that hit me the first time I heard the news. I’m beginning to think these feelings are my new normal.

The drugs…friend or enemy? I don’t know. My feelings towards them also waver. On the one hand they ease my dad’s pain and on the other they keep him in this haze. I call it the “scary haze” where I look into my father’s eyes and I do not recognize any of part of him. It’s heartbreaking and all I can do now is tell him the confusion is a side effect of the medicine. I encourage him to sleep and I hold his hand. Sometimes that works. Sometimes I just have to deal with seeing him in the haze. “It’s what’s suppose to happen.” Yes, I heard you! I often wonder if we just stopped the drugs for a bit, would he come back to me. Would his eyes tell me if he’s still really himself? But then he’d be in pain and that is something none of us want. There are no clear cut answers about the drugs. They work, sometimes they don’t. Another frustrating part of this challenging process.

I’m sharing my thoughts and feelings because even though I feel my family is the only one going through this, there have to be others. Hospice is a scary process but also a beautiful one in which you can show your family member that they are loved.

Loved until the very end of their days.

Given all we’ve been through I still do not fear death itself. The process we are in now is far more daunting. Mostly because we can’t bear to see dad suffer. It’s agonizing to not be sure if he’s suffering or not. If not physically, emotionally this must be so hard for him. I just hope he finds comfort in our love and care. I pray each day that we make the right decision for him.

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No One Tells You How Hard Hospice Care at Home Is

How is it that I can’t find a single blog on hospice care? It boggles my mind.

I know this is a difficult subject to write about. Let me tell you it is a nightmare to live through and at the same time it is the greatest labor of love. Probably one of the most beautiful things I will ever do. However that doesn’t take away from the very real suffering my family is going through.

My father is dying of bladder cancer that has metastasized. He’s been at home with hospice care since 12/15. The first month was a good one with only one visit to the emergency room for an incident that was quickly resolved. The second month however has been a nightmare I never imagined would happen so soon.

The deterioration was overnight and fast. Violently fast that it left my sister and I in shock at the speed of it all. It’s so hard to see your father going through this. It’s so hard to be unable to console your mother. It’s so difficult to have to call the Visiting Nurse service every day, at least three times a day, because the symptoms keep changing. Just when you think you’ve helped him in one way, something else happens.

And after every thing you are doing, you still don’t know if you are making the right choices for him. You feel like a failure. I feel like a failure! I can’t fix it! I love him so much and I feel so useless against this stupid disease. And just when you feel the most defeated, there is that one moment between dad and I where his personality shines through and he makes me laugh. Just like he used to.

I live for these moments. It makes me feel like maybe we are doing something right.

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#Project365 Day 24-28

Skyscraper in the Making {Day 24}

Skyscraper In The Making {Day 24}

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Sweet Heaven {Day 25}

Sweet Heaven

A friend took me to Veniero’s for the first time!

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Chocolate Wasted {Day 26}

Chocolate Wasted {Day 26}

I may have indulged on the next day as well! :)

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Sweetest Text {Day 28}

Sweetest Text {Day 28}


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Note: Day 27 was my dad’s birthday, picture taken on that day is private so it will not be posted anywhere.

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Birthday Love

It is the early hours on the day of your birth.
As I sit here guarding you through the night
a lifetime of memories flash before me like scenes from a movie.

I don’t even know if this is a memory
or the result of hearing the story over and over
But I recall you carrying me towards the waves at Rockaway Beach,
Tossing me against the waves as you held me safely in your arms.
I see you at every school play, piano recital, and graduation.
Driving me to my first day of high school.
Our dance at my Sweet Sixteen party to the Blue Danube waltz.

Every time I drive on the Grand Central and merge over to the fourth lane within seconds,
I think of the first day you made me do it so i could lose my fear of highway driving.
Every time I cut off a yellow cab driver, I remember the day you taught me how to do it.
I remember the first day you saw my apartment, it was so bitter sweet for you.
But I knew you were proud of me.

I remember sitting with you when we got the first diagnosis.
I remember every day of those 4 months you were in the hospital back in 2008.
I remember you coming home.
But most of all I remember every precious day we lived free of fear.
We lived!

I remember the day our lives changed this past December.
Yet today on your birthday I celebrate you.
I pray God gives you the courage and strength for what may come.
You are the bravest man I know.
I love you with all my heart.
And we are the luckiest family because we have each other.
Now, always,and forever.
Happy Birthday daddy!
October 2011

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This Doggie Almost Went to Heaven

Last Sunday, as I was getting ready to watch what would be the first of two depressing football games, Max was being a bad boy. My mom had made a delicious seco de pollo for lunch. Max somehow got into the garbage can and pulled out a chicken bone. My mom caught him in the act and yelled for me to come quick. I was able to pull some of it out of his mouth but the rest he ingested. I didn’t think anything could be done and since he looked okay, I went back to what I was doing. Within minutes Max was laying at my feet and wheezing. Not sure what to do and not wanting to freak out my dad who was in the living room with me, I put my finger down Max’s throat to see if it would help. It did and by the second time he coughed up a rather large piece of bone. Oh My God! I could not believe what he had swallowed.

Thank God he came to sit by me when he was having trouble breathing. Can you imagine what would have happened if he stayed in another room?! I can’t even bear the thought. My dad saw what happened and he was grateful I saved “his boy’s” life. I didn’t realize the gravity of what could have happened until later when I was holding my “puppy” in my arms. How is that now at almost 15 years old he’s going through the garbage?! Something he’s never done before. I wonder how he managed since the garbage can is a lot taller than him. Mom swears she didn’t let any bone fall on the floor and I know she’s right because she’s OCD {like me} when cleaning up.

Oh Max! He was very shaken up too. I’ve never seen Max look scared, not since I picked him up at the pet shelter. He slept like a baby for the rest of the afternoon. That’s when I grabbed this picture. Doesn’t he look like an Angel who would never misbehave? Yeah, right! ;)

Lucky Dog Sunday

Later on that night I was trying to coax him back into the kitchen but I’m sure he was thinking, “Oh Hell no!”

He’s no fool! :)

Max scared

Eventually he got closer because of hunger and curiosity! :)

Max Getting Closer

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A Favor for My Sister

Dear Friends,

Will you please take a few minutes to complete the survey below? This survey was created by my sister to gather information for her dissertation. As you know my sister is getting her Ph.D in Psychology and would greatly appreciate your help.

Also please consider tweeting this post and/or sharing it on your Facebook page. Thank you in advance!

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Dear Bloggers:

Please consider participating in a study on acculturation. The survey is free and takes about 20 minutes to complete. Participation is completely voluntary. You will also receive personalized email feedback based on your answers within 5 business days. I have made the survey available in both English and Spanish (see links below).

English survey: https://www.surveymonkey.com/s/85TVFLR

Spanish survey: https://www.surveymonkey.com/s/85MQW6N

I am trying to determine which questions regarding cultural identity are associated with acculturation. As a Latina, I am specifically interested in identifying how culture influences the view of Latinos who live in the United States.

Please feel free to forward this link to other family and friends who you think would be interested in participating.

Thank you for considering this request.

K. Aizaga

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